Wednesday, October 29, 2014

I'm home safe and sound

I'm home safe and sound

I forgot to mention a few things. One night in Cham when we were going to dinner, at the hotel the people lifting my wheelchair up five steps almost dropped me. I was tipping over yelling and almost fell out. Three more seconds and I would have been out of my chair!  Phew!

Last Wednesday my right ear was starting to close up. By Thursday my head was ready to explode. On Friday, Katrin made me an appointment with an ear doctor. He was a relative of a relative. He looked at my ears and told me what I already knew...,I had major wax! He used a tiny vacuum to clear it out.

I'll try to post pictures soon. I will also do a monthly post to keep you all up to date. Thank you for following me on this journey! Xo

Sunday, October 26, 2014

Monday through Friday

Monday 

I had a 90 minute colonic that only produced gas. Can you imagine? I could have fueled a small car! 
Tuesday

My colonic was more productive... Enough said.
Wednesday 
Another colonic plus my three IVs just like Monday and Tuesday 
Thursday
Only my IV 
Friday

Colonic and IV and great news from Katrin.
My high nickel is now only a trace. I have calcium where it shouldn't be and I have an unidentified peptide on one of my genes. Once they figure that out a few results will improve. My bloodwork overall was much better, closer to normal. When I heard the news I cried and and then Diane cried. Katrin held her fist in the air and said YES!

Saturday, October 25, 2014

Great Test Results

Katrin, my doctor in Germany, just told us the results of the Acumen (the lab that does my blood tests) lab work - it shows just a trace of nickel! Also many of my other numbers are much better. The apherisis really did work.

We're coming home on Monday.  Robbin's doing shopping and someone on Team Deb that remained behind will start cooking for my Tuesday return to the normal routine.

Monday, October 20, 2014

Update through the weekend

Hi everyone,
Sorry for the delay. On Wednesday Diane and I left the Hotel for two hours to go to the market place. Our first stop was a shoe store and Diane made fast friends with the sales girl. I enjoyed watching her have so much fun. She bought two pair of boots and the saleswoman gave Diane a free gift, a shoe horn for her father. 
The next shop was knitted goods and Diane made friends and got a free scarf, nail polish and leotards. The streets are cobblestone so we took a taxi back, I was pooped.

On Thursday I had my second apherisis treatment and it went very smoothly except for the initial poking of my left arm. After four pokes Dr. Straube was successful. During my treatment Diane went shopping and came back with some really nice clothing . After my treatment I was very weak, poor Diane had to lift dead weight. Friday was my worst day I was weaker, my speech was worse and I was very emotional.

On Saturday Maggie drove three hours to pick us up and then three hours back to the first hotel. We did some sight seeing along the way.

Today is Sunday and I'm very constipated, sad but true. Tomorrow Katrin is going to give me a laxative to help loosen my bowels so I will be able to release 5 days of ...
For colonics. 
That's all for now

Friday, October 17, 2014

Closing out the week

Robbin, here. Deb emailed me to write an entry. Her request was contained in the subject line. The content of her email said she was tuckered out and her apherisis went well yesterday but today she is weak. To be exact, the subject said “Please Post”.

Did she mean, “Robbin, please could you write something in the blog?” Obviously.

But did she mean, “Robbin, please let everybody know I am too tired to write, but had a good treatment yesterday and don't want anyone to worry?” Maybe.

Or did she mean that I was to tell you all what I'm doing in her absence and try to entertain and inform?

Why not!

A couple of weeks ago I was eating a hamburger prepared by someone on Team Deb. With this soft food, I'll be darned if I didn't break the inside face of the tooth just in front of my first molar. So on Tuesday, I finally saw the dentist. He said he couldn't do anything until November 4 and wouldn't I like to pay him $95 for the xrays and his time. This is after a 1 hour drive there and 20 minutes of paperwork.

I drove an hour back and picked up my golf buddy (Janusz – Polish for John) and we went to the golf course. We go almost every day. It is amazing what repetition does to improve your game. We're loose with the rules. Balls in the water are not counted. So are balls that we aren't happy with – take another and either play both or just the better one. Cheating? Sure, but there is a method to this. What did I learn from the chip that went over the green. If I take another shot with a lighter touch and it does better, then I learned something. In fact this practice has made many of my regular shots so very much better. At 100 yards I can generally put it on the green on the first try, which was much rarer in prior years. Today I landed on the apron of a 480 yard hole in 2 shots. Two GREAT STRAIGHT shots. That birdie came from a season of hitting a second ball or sometimes a third when I could identify whatever fault caused the prior balls to go astray. Cheating? Yep, and it has helped my game a great deal.

I got home after golf to an alarm ringing. Like the buzzing of the dryer. Did one of the members of Team Deb come by to do laundry? I wouldn't have objected if their machine was on the fritz. But the laundry room was silent. It was coming from the basement. Down there is a box hidden away in a cabinet that alarms us when a high water situation develops in our septic tank. I stopped using all but the most necessary water fixture. The next morning I called the septic people and they promised an afternoon visit. But we had a couple of inches of rain Wednesday so they came Thursday. All I can say is, I'm glad Deb is in Germany and Team Deb isn't on duty. All is well now.

I've been thinking it would be nice to take pictures off the deck of the lake and the forest behind it. Every day at noon, say. For a year. Then put the pictures in a digital frame and watch the seasons go by. That is quite a commitment. I didn't know if I could do it reliably or if after I started it, I'd poop out. So I never acted on it.

Then I read about some software that runs on Canon cameras that would do such a thing. Since a camera is just a computer with an eyeball in the front, a screen on the back and memory in the middle, it made sense to me to write programs inside the camera. With an older canon powershot camera, I can hook a USB cable between it and a computer little bigger than a pack of cigarettes and cheaper than a carton,) which will talk to the camera and ask it to take pictures.

I found my camera on ebay. Bought it. It came. I put in batteries. Turned it on. The lens went out and the screen gave an error. The seller was mortified, took it back and made a full refund. These 10 year old cameras are available for not so much so I bought another on ebay. This one came. I put in the batteries. The shutter won't open. The internet calls it the black screen of death. I reported it to the seller and she said, “it worked when I shipped it”. I'm still negotiating. I believe if I take it apart there is either some gunk on the shutter or the CCD is broken and can be replaced for $10. But I bought a working camera and received a broken one. I'll figure something out.

With Deb gone, I can go to bed early or late and sleep my 8 hours. When she's here we're on more of a schedule. My normal day is getting up and finding at least 2 women in the house hustling to get Deb up and going, preparing food, and getting the day going. I have breakfast and coffee and scram. Deb's got a routine. The feeding tube has a protocol of how much and how many times. There always seems to be a batch of her food in the blender getting ready for a “feeding”. Then the grooming stuff, then emails and snail mail. She and Team Deb complete paperwork jointly. 3 times a week a nurse drops by to give her an IV. Early afternoon she's ready for a little snooze and may sneak in a late afternoon nap too. Especially on an IV day. Then some more feeding and emails and whatever needs doing. They are talking constantly. Laughing and crying and talking. Our house has never had so much talking. Deb is not talking so much, but still there is a lot of communicating. There is a constant buzz. I keep my head down and frequently need to be addressed twice before I catch on someone actually said something TO ME. That something said is frequently: What do you want for dinner? This is one of my perks from Team Deb – I don't cook much any more. I have just to say what I want and it magically appears on my plate later that day. And Deb makes sure it is done the way I would have done it. Of course I'm doing the grocery shopping so I can't pick lobster unless I already bought it. Nevertheless it is a good perk.

After dinner there is some more email and grooming and preparing for bed. She then plants herself in her easy chair and lets Team Deb off the hook for the night. Really, she transfers from Day Shift to Night Shift. We take in an hour or two of TV. We don't watch broadcast TV much and almost never with commercials. Deb's got her shows we record and we watch NetFlix stuff. Lately we're watching “THE CLOSER”. Every night at least 1 episode (a few times 3!). We're watching it chronologically. Both of us really enjoy how the characters develop as the series progresses. We're up to season 4. I think after this, she'll pick up her broadcast shows. Marathon style.


There you have it. Absolutely ordinary. Nothing like the extraordinary stuff I wrote about in India. Just getting milked by a dentist, paying someone to haul our shit away, cheating at golf and practicing the great American pastime, TV. A regular Leave it to Beaver episode.

Tuesday, October 14, 2014

Monday and Tuesday



Hi everyone,
On Monday we went to the INUS Medical Center and our first appointment was with the CEO who is a homeopathic doctor. She took down my history and explained the procedure and answered our questions. After that they gave us a tour of the apherisis room, which has four beds. A doctor showed us  the computer for the apherisis treatment. It has two filters, one to separate the plasma and one to extract the toxins. Soon after they gave me an EKG.

After that we met with Dr. Straube who once again explained the procedure.

On Tuesday I had my first apherisis treatment. They timed it for two and a half hours because I'm small. Who would have thought. They put needles in my arms, one for out and one for in. They kept asking if the needles were ok. Hell  ya, after stem cells it was a piece of cake! During the procedure I napped until a nurse woke to tell me that things were going well and they didn't have to have  me pump my hand. When it was over they showed you a small bag with the toxins that they filtered out.they told me that it was oily and they suspected chemicals and solvents . They will send it out for a full analysis, I can't wait to know what is in it!
Love to all xo

Sunday, October 12, 2014

Friday, Saturday and Sunday

We have been very busy. On Friday I had three IVs and then a wonderfully productive colonic. It was so productive that Jutta my therapist told the next patient about it. I guess there are no hippa rules here. The next patient was my new  friend Berent. At dinner we couldn't stop laughing about it. Jutta is so passionate about this shit pun intended!

On Saturday Diane and I got hair cuts and did a little shopping . In the evening Diane packed us up and organized everything . She is a real work horse.

On Sunday Maggie our driver picked us up at the hotel for a four hour drive to Cham. This hotel is very nice and dinner was out of this world.

Tomorrow I have an appointment to meet Dr. Straube. He will determine whether he can us the veins in my arms or if he has to go through the groin . Wish me luck!

Love to all
Xo

Thursday, October 9, 2014

Wednesday and Thursday

Hi everyone,
We landed safely on Wednesday, after a hard time at the airport, we go to check in and told that someone will assist us to the gate, we waited and no one came. So Diane went back to the checkin counter and a lady asked to see our passports and tickets and at that point she wanted to play God and informed us that we CANNOT have those seats, they are for emergency only. So we had to fight with her and she went to tell on us to her supervisor!
So as it turned after a half hour discussion we got our bulkhead seats! Huh!

On a good note, we found a very nice friend at dinner and invited her to join us while she was staying here. Her name is Berent and she is from Turkey, we have the same doctor, Katrin Bieber and she has high in copper and has many neurological problems.

After some discussion she had told us that she had lived in Pittsburg, and she went to Carnegie Mellon for her graduate school. She earned her degree in  human computer interaction. Ryan, Jenny - What a small world!

At 8:30pm we got a visit in the dining room from Dr. Bieber with a basket of oils, nuts, ans seeds, eggs and a magic bullet, what a nice lady!

On Thursday after a rough nights sleep I had my IVs at the hotel and in their medical office, the a nap, and then a colonic.

That's all for now, love and hugs xo

Tuesday, October 7, 2014

Monday, October 6, 2014

Off to Germany...third time is a charm

Hi everyone!
I know it's been a long time since I've blogged but I will blog my 3 week adventure to Germany.

I will be accompanied by one of my caregivers named Diane. We will leave from Newark on Tuesday evening, October 7. This trip I will see my normal doctor, Dr. Katrin Bieber and then I am going to a town called Cham. In Cham there is a medical center called INUS. At INUS they perform a therapy named apheresis that will clean my blood from toxins, heavy metals and more. Google INUS Cham and search for therapeutic apheresis.

After my week there I will return to Bad Groenbach to Dr. Bieber for a week of IVs and colonics.

Don't expect a blog everyday, maybe a few times a week.

Send me emails so I know you're reading.

Deb xo